Finding Ninee » Sharing our parenting and special needs stories with heart and humor.

Love Gives Us The Hope To Imagine

When I was pregnant, I wondered what my boy would be like. Imagined what it would feel like to be a mom. It doesn’t feel like it’s been 11 years since I stared into his face thinking “I did this. We made him.” I marveled at the teeny-tiny fold right beneath his eyes, his perfect lips, and at the heartbeat I could see in the soft spot on his bald little head.

Sometimes, I feel grief for past years; for the former versions of him. Of myself. When I’m feeling sad about those years, I imagine the future, and how one day, I’ll miss the version of ourselves that we are right this minute. 

Love Gives Us The Hope To Imagine

He still has that little fold beneath his eyes. He’s still young. We have time. 

I was 40 years old when I was pregnant. By then, I’d fallen in love with nieces, nephews, and friends’ children. I marveled at their incessant chatter and looked forward to my own little boy standing at the front door, chattering away about his ball while waiting to go to the playground. I looked forward to him turning three and attending preschool at a Montessori like the one I went to, singing “John Jacob Jingleheimer Smidt,” just like I did. 

Of course, nothing is as we imagine it to be, and at three, I knew what it felt like to be a special needs mom. He was starting Preschool Autism Class rather than Montessori and wasn’t exactly chattering. Some of my hopes and dreams for him changed when his speech therapist told me not to ask him to say “open” at the front door. “Just have him say “O,” she said. Hopes changed, but they were still there. Because love. Love gives us the hope to imagine, even during uncertain times.

***

When I booked our Disneyland tickets for spring break this year, I imagined walking from our hotel to the park on a yellow-tinted California morning, talking about which ride to head to first. Now, it’s hard to imagine how Disneyland will survive this pandemic. How we’ll each be when we can once again hug freely, and laugh in line with strangers.

This morning, I felt hopeless. The isolation and anxiety about school this fall felt like too much. It was hard to imagine ever feeling safe again. 

After a therapy session that consisted mostly of my tears while detailing sleeplessness and anxiety dreams, I made myself go outside to sit on the porch swing. There, I traveled to the future and imagined looking back on these uncertain days where I feel afraid to imagine traveling anywhere, much less someplace as crowded as Disneyland. Future-me reminded porch-swing me that we are made of hope and stardust.

That we are imagination and love.

Love gives us the hope to imagine. 

With that, I went inside and invited my 11-year-old to come sit with me. While swinging, the world tiled to the right, just a tiny bit. It was enough for hopelessness to turn into hope. To feel complete and utter love for another human. 

I stare at him. “What?” he asks. “I love you,” I reply. “I know, Mom. You tell me all the time.” He smiles, rolls his eyes at me, and I send a thank you to the universe for today, for the past, and for the future. 

This has been a Finish the Sentence Friday post, with the prompt “Can you imagine?” along with this photo, by the fabulous Mardra‘s brother, Tim Wright.

Doesn’t it look like a woman?

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  • Allie - Sweet post! I have never been to Disney LAND. I am tentatively exploring a California road trip next summer (although talk about can you imagine!), and was wondering if I should try to include that.

    Dumb, novice question….but how does one find the prompts for FTSF:)?

    BTW, that does look like a woman, but what is it?July 25, 2020 – 6:19 amReplyCancel

    • Mardra - Hello Allie, jumping in here. 1) join the Facebook group to get the weekly prompts. There’s still tim on this one: “Can you imagine?” And/or the photo. 2) The picture is of smoke. Pretty cool, eh?July 25, 2020 – 7:43 amReplyCancel

    • Kristi Campbell - OMG please do a CA road trip and stop by here!! Also, join the FTSF FB group. I’ll DM you. And it was smoke!July 26, 2020 – 11:51 pmReplyCancel

  • Mardra - Me again. Link to the full pic here: https://www.redbubble.com/people/bobst1080/works/7970809-dancerJuly 25, 2020 – 7:49 amReplyCancel

  • Dana L Campbell - Love this so much! He knows he is a, ‘much loved boy.’July 25, 2020 – 10:23 pmReplyCancel

    • Kristi Campbell - I hope so! I yelled at him yesterday for spilling salsa on my keyboard… and feel awful about it. So thank you for this.July 26, 2020 – 11:52 pmReplyCancel

  • Emily - Aww, what a sweet ending and that picture of you two is amazing.:) This post helped me feel less alone with my up and down moods/feelings. I too go from feeling hopeless and frustrated and anxious to feeling hopeful that the worst is behind us. I hope Disneyland can be in your not too distant future. xoJuly 26, 2020 – 7:27 amReplyCancel

    • Kristi Campbell - Thanks, Emily. And OMG these times. How can we not feel hopeless and frustrated and anxious and also hopeful?? It’s like nothing we’ve known before. And it sucks, but also? We have people. Like you. <3July 26, 2020 – 11:53 pmReplyCancel

  • Tamara - It totally looks like a woman. I thought that too!
    Also I swear I keep having kids because it’s like a science project. What will a third one look like, when I already know what one boy and one girl look like? And there’s some math projects too – like how fast will my love multiply and grow?

    It does help the hopeless thoughts. I have some days where I feel normal(ish) and some days where I just think, “If it’s not the virus, it’s climate change or really stupid voters.” Yup.July 29, 2020 – 2:24 pmReplyCancel

    • Kristi Campbell - I can’t wait for you to share photos of your new baby! I think your love just expands to include. And yeah, the virus and climate change and really stupid voters plain old suck. Yup indeed.July 30, 2020 – 9:14 pmReplyCancel

  • Celia - I just read this post today and the timing is perfect. One of my boys asked me this morning if having kids is like I imagined it would be. The answer? No. I never imagined what it would like being a parent. I knew I wanted to be one, but I never really thought about the finer details of parenting or what my kids would be like. I can guarantee that if I *did* think about it, I wouldn’t have imagined having a special needs child, yet here we are and I can’t imagine life any other way (except maybe less ignorance and more acceptance of people who are different than the “norm”, whatever that may be). Sometimes I catch myself watching old videos of him, and the pain of the first few years of knowing he was different but trying to figure out why comes rushing back. It seemed like the days of him flailing around, crying in frustration while trying to find the words to communicate how he felt would never end. Now I wonder if he can ever be quiet! (Seriously, love that he talks, but once he starts, he doesn’t stop.) He’s grown and blossomed more during this pandemic than he has in years. I mean, he’s learned to ride a bike, started going under water in our pool, started taking showers (and doesn’t scream that he’s going to die when water hits his face), and it’s absolutely amazing. Now if he could ever learn to tie his shoes … 😉September 1, 2020 – 2:08 pmReplyCancel

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