Hi friends! Have you been following The Our Land Series? It came about because you responded with sharing love to The Land of Empathy and Wonder. Since then, I’ve had the opportunity to feature some beautiful voices and people who very much want for Our Land to become a reality. Thank you all. I appreciate each […]
by Kristi Campbell
Melissa@Home on Deranged - First off, thanks again for sharing. Every little morsel you choose to share just feeds my innate curiosity to just. know. more. I still have questions, because I’m a retired reporter and a nosy woman. When did you realize this is his disorder? Did you have to see a specialist? What are your coping mechanisms as a caretaker? Anyway….thanks for the insights and also for the reminder of a lesson I learned when my mom was first diagnosed with pulmonary fibrosis: people don’t always look “sick” (whatever that means). Enough with all the judging.
Done with my rant. For now.May 29, 2013 – 1:45 am
Kathy Radigan - Thank you for sharing your story. It was just what I needed to read today. Both our boys have SPD. Ear plugs and scissors have been in my purse as well as a host of other “tricks of the trade” for as long as I can remember. Our eldest has been very successful at intergrating the world around him. But it was not always like that. Certain sounds would bring him to his knees and he would go into a panic during Christmas time because some of the songs had notes that when he heard them it would disrupt his brain to such a point he could not function. People would wonder why this beautiful charming boy would start to scream at the top of his lungs and go into full panic mode “just” because Oh Holy Night was playing. Our little guy also deals with it as well and it’s why I was so glad I read your piece today. Lately I have been finding myself say or at least think, knock it off, get with the program, stop, when I know it’s not that easy. Thank you.May 29, 2013 – 2:56 am
Lisa Nelson - I really enjoyed your post Jen.
I do have a question. I know a little boy who has problems. I don’t think it’s SPD, but he has other attention deficit, autism things going on. Not sure.
I don’t know, my son is like the only kid who will play with him – and enjoys spending time with him.
Anywho, The way people seem to deal with it is by excluding him from activities. We can’t have him around because he can’t be controlled.
I’m very uncomfortable with that line of thinking. Yes, he is extremely disruptive, but can everybody learn something from him about including everyone. You cannot disrupt a whole class from learning – but there must be a balance, no?
I’m not sure if you are reading these comments, but I would like you to respond to this. How do you strike this balance. It’s not right for anyone to be excluded.
I think differences should be celebrated and learned from – not excluded.
I really like this blog and will be subscribing. I like the message of empathy. It’s so important – and a message that many of our children have missed.May 29, 2013 – 6:38 am
Misty Cotton - i may be the only person to say this, but why not put a SPD shirt on him? something on the back of his shirt? or on a hat? it could be something really subtle, is there a ribbon for SPD? it could be funny, like, i bet you wish your mom would push you in a stroller too. or what about a med alert bracelet? people may notice the bracelet, get clued in that there’s a medical issue, and mind their own business. me, i’d probably just give people dirty looks, or stick out my tongue. hey, if people are rude enough to stare at my kid, i’m rude enough to stick out my tongue. i’d like to hear more about your decision to homeschool. i worry that my daughter may fall behind in public school, she has a developmental delay, and that school won’t try hard enough to keep her at a close pace with her classmates. thanks for sharing your story!May 29, 2013 – 7:43 am
Janine Huldie - Jen, I want to thank you so very much fro sharing this with us and explaining this disorder to us firsthand. I taught kids on all ends of the spectrum and I remember other teachers who never dealt with kids such as your son asking what was wrong with them and why they behaved this way. I found myself explaining more then not that some kids just couldn’t help themselves and it was beyond their control. You are right many people cannot grasp or fathom this. But it is real and definitely not imagined. So thank you again for sharing this and putting a face on this disorder. You are truly amazing and say that from the bottom of my heart!! 🙂May 29, 2013 – 7:56 am
Christine M. (Cool Mom) - Hi! Just signed up for your email subscription. Great site. This is a post that I can relate to. I, also, have a daughter with SPD. We cannot go to the movies, for the same reasons as the dolphin show and anything remotely loud isn’t an option. We have had many of the same issues.
While it isn’t a shirt, there is a great resource at Sensory Street for free downloads. My two favorites are the “Do You Know Me?” poster and the “SPD Calling Cards.” I printed the calling cards and had them in my wallet. I used them more than once and they did help the situation.
People did tell me that it would get better as she got older. I’ll be honest, I didn’t believe them. However, I have now witnessed it and I pray that you notice the same thing in your child.
Thanks for the great post. Here is the website with the downloads I mentioned. I’ll make it a safe link so it posts easily. Hopefully that will work.
http(colon)//sensorystreet(dot)com/free_downloads(dot)htmlMay 29, 2013 – 8:04 am
karen - thanks for the guest post and all the information, As I was reading I kept thinking this poor kid’s self esteem is going to be tampered and then you wrote that at the end. That must be the hardest part of all, making sure he knows how wonderful and special and important he is no matter what others say.May 29, 2013 – 8:33 am
Christine M. (Cool Mom) - Oh! I wanted to add that when we discovered about DD’s SPD, it was actually a good thing, we learned to understand more of the WHY’s and we described it as she is super-sensitive meaning she has super-hearing, super-tough, she hears and sees things that most people don’t even register – kind of like a super hero. This was awesome for her, it turned something that could be seen as a negative into a positive. It worked really well for her -and the self-esteem side of things.May 29, 2013 – 8:38 am
Katia - This text was absolutely amazing, eye opening, sensitive, loving. I thought my pathetic little stomach flu episode was parenting “on speed” but it sounds like you’re living it every day. It also sounds like you’re a very brave parent, in letting him explore his own boundaries. I should learn from you. Thank you and thanks Kristi for featuring this post.May 29, 2013 – 9:28 am
Maggie Amada - I never knew SPD existed. It must be so hard on the parent and the child both. I think as a whole, our society is under-educated on brain disorders and what they could mean. Thanks for the reminder to think before we judge and to be a little kinder.May 29, 2013 – 9:54 am
Kenya G. Johnson - Another awesome share in the series. I have been the asker of “why is that big kid in a stroller?” I feel like I’m repeating myself but I mean it – this was an excellent post. I’m learning where it matters to be sensitive. I want to ask a question, when I normally wouldn’t have the courage to ask. I feel like this is a yes but i just wanna know, “Is it insensitive to use SPD out of context?” Like when you say, “He’s a little OCD or SPD” but not really, you know what I mean? I never wanna rub anybody the wrong way especially in blogging since we all read each other. Thanks for sharing Jen.May 29, 2013 – 10:10 am
The Sadder But Wiser Girl - I love this so hard. My kid is THAT kid…May 29, 2013 – 11:45 am
Kerri - Although Boo does not have SPD she did have a very serious issue with eating. I remember once I was that mom at a family party who in the middle of a conversation, turned, flipped Boo over gave her the stop choking chop to her back over the trash can and continued my conversation. The woman turned green and my mom said to her not to worry because “we do this all the time”.
I’m with you on the sign idea. I always think we are lucky that Boo is so petite that in a stroller she looks like she should be in a stroller.
Thanks for linking up with Kristi!May 29, 2013 – 12:06 pm
Emily - This was a wonderful post because you so clearly explained SPD, both the challenges as well as the misunderstandings associated with it. I too know how it feels to be the parent “judged” at the zoo or in the playground and you’ve done an excellent job of showing that we need empathy, not judgment.May 29, 2013 – 1:48 pm
Dana - It’s so important to be informed, so thank you Jen for educating us about SPD. I’m going to share with my children so they can extend empathy to kids that may be different from them.May 29, 2013 – 2:33 pm
Jean - Jen, you write about your son in such a loving way with such understanding for who he is. We are getting a better understanding for who he is which in turn helps us create more understanding in our children who will be at the playground with him, at the dolphin show, at the family party.
Also, I side with your son, the dolphin show is waaayyy too loud.May 29, 2013 – 9:44 pm
Jen - I want to thank all of you for commenting on this post! It is very gratifying for me to be able to share because it not only helps my son, but it helps so many other kids and mom’s. I wish I could answer your questions directly. So here’s a mini attempt. If I don’t address you I am thanking you!!
Melissa-I’ll answer your questions directly little lady.
Kathy- I totally feel your pain! I remember carrying Isaiah around the Aquarium last year when he was WAY to heavy to be carried, but when I didn’t he would just keep yelling “mommy!! Carry ME!”
Lisa-I’m going to answer your question from my blog post 🙂
Misty- I think putting an SPD shirt on a child with his cognitive abilities would only affect his self esteem. He is ultra aware of being “different” and I would never want to make him feel bad about his “quirks”.
Janine, Karen, Katia, Maggie, Emily and Dana ~ Thank You!!
Christine I know that website! Thank you for the reminder I haven’t been there in a while! I think that’s awesome, Isaiah has a “super power” side effect too. He has extraordinary balance! They always marveled at it in OT. HE freaks me out, but I’m glad he has it!
Kenya – I wouldn’t say he’s a little SPD, although I’ve been known to bandy about “I’ve got Sensory Issues” in the same sense… Does that help?
Sarah~ I know 🙂
Kerri ~ We’ve had those moments too. Not so graphic 🙂 but ones that are “normal” for us!
You guys have all been so awesome! I am so glad I shared!May 29, 2013 – 9:54 pm
Stephanie @ Mommy, for real. - This is great, both of you! I love this series so much. Jen, my daughter does not have sensory processing disorder, but she is highly sensitive, and in the past few years we have dealt with extreme sensitivity to noise, wind, and many phobias including thunder and wild birds. (I know- birds. For real.) We have avoided crowds, concerts, movie theaters, the zoo, and going anywhere during mildly windy weather, and even had her in therapy for awhile. She has improved a lot, and I know it is not at all what you are experiencing, but I understand the challenge of having a “big” kid who is not reacting the way the “other kids” are when in public or at a fun outing. You are doing a great job.May 29, 2013 – 10:12 pm
Kristi - Again, friends. Why I hate not having nested comments. You are amazing. Jen is amazing. Isaiah is amazing and wonderful and so dang cool. He so deserves having the land of empathy and wonder at his feet. Appreciating who he is and who he will become. thanks huge Jen. Keep commenting, friends. I just must go to bed. IRL work sometimes interferes. Like now. <3May 29, 2013 – 10:56 pm
Anita @ Losing Austin - Loving this series more and more… thank you both.May 29, 2013 – 11:41 pm
Kimberly - You are a wonderful Mom. You are doing everything for your babe to function (very well) with his disorder. He is so lucky to have you. As I am sure that you are lucky to have him. Writing about this helps to educate others. It helped me to understand this better.
People don’t get it and they are rude. And too quick to pass a judgement. That’s why you have to keep writing and educating.
You’re a good mom.May 30, 2013 – 6:35 am
Deb @ Urban Moo Cow - Jen, what a beautiful post. Another incredibly powerful reminder not to judge. Ever. Can’t wait to meet your little man in person. xoMay 30, 2013 – 12:41 pm
Rachel Demas - So many things…that is a beautiful picture and makes my heart melt next to your words, Jen. I love how you have imagined your son’s world so that others can understand him as well as other children with SPD better. It’s just what Kristi’s series is about. And, finally, just a little thing, I love that you figured that having your son in a stroller helps him feel more secure. I think that’s awesome.May 31, 2013 – 1:37 am
LM - Jen, great painted pic about SPD…albeit a quite not too brightly painted picture- in honor of your son 🙂
Prior to having a child I was one of “those” people who would spin a ‘glance’ in the direction of a ‘loud’ child.
After having a child my spinning glance is slower to react and now when I read stories about your son and about Tucker I stop in mid spin and remember their stories.
Thanks for opening my eyes and for keeping them open.June 3, 2013 – 1:02 am
Tracie Massey Howell - Thank you for sharing, this is very similar to our life, also with Autism. SPD and Autism intertwine, but we deal with many of the same issues. As we are at home trying to watch a movie, B is jumping all over the couch, running around in circles, bouncing like crazy. I was just doing some research and needed that reminder that SPD is tough on him and it’s his way of wanting to watch a movie, but doing this is so difficult. April 13, 2014 – 8:45 pm