Today, on World Autism Awareness Day, I think about the progress that my little boy has made. While he does not have an official diagnosis of autism, he’s next to it – spectrumy – with speech and language challenges, sensory and OCD issues, and overall motor skills and motor planning delays. Honestly, just 12 months […]
by Kristi Campbell
Emily - This is one of my favorite posts of yours and you SO SO SO deserved that award for it! I may have made this comment last time, but the way you are able to show us how T may be feeling or thinking is incredible and truly insightful. Thanks for sharing it again and most especially today – how perfectly appropriate!April 2, 2015 – 10:07 pm
Kristi Campbell - Thank you Emily!! Of course, I’m guessing really based on his behavior but I think it’s pretty close to how it’s been for him at times for sure. And thank you!!!April 4, 2015 – 3:29 pm
Sarah - How did I miss this post before? It’s perfect, absolutely perfect. And, yes, you could definitely be describing what’s going in my head at times.April 2, 2015 – 10:26 pm
Kristi Campbell - Maybe something that happens in all of our heads Sarah? And maybe it’s before we knew each other?? I think I posted it in August 2013 so possible.April 4, 2015 – 3:32 pm
Allison carter - Yes, perfect.
Perfect.April 2, 2015 – 11:22 pm
Kristi Campbell - xo and thanks for the idea.April 4, 2015 – 3:32 pm
Janine Huldie - OK now I am crying and you most definitely deserved an award for this and just so much more, KristiApril 3, 2015 – 2:03 am
Kelly McKenzie - Oh Kristi. This is the first time I’ve read this and I am bowled over. But in a good way. T has such a wonderful advocate in you. There could be no better.April 3, 2015 – 6:47 am
Sandy Ramsey - That post is still so incredible, Kristi. It has been amazing watching Tucker grow and make fantastic strides. Thank you for sharing the hugeness of those moments with us. You are a fabulous mom and a beautiful human! Love you! XXApril 3, 2015 – 8:22 am
Kristi Campbell - Thank you Sandy! You are a beautiful human and an awesome mom <3 So much love back to you, friend!April 4, 2015 – 3:43 pm
Allie - Just like the first time, you took my breath away. And you so deserved the award for this. Even twelve years into out journey, I need this. I need the reminder. A reminder that yes, progress is made, but also, breaks are still needed. By mommy and son. Love this, you and your sweet, miraculous boy!April 3, 2015 – 8:31 am
Kristi Campbell - Here’s to remembering that our kiddos need breaks and that we do, too, sometimes! Love to you, Sweets!!April 4, 2015 – 3:50 pm
Kim - I loved reading this from Tucker’s point of view!!! I think that lots of us could do well to remember to breath and recognize the mad before it takes over – at least I know I have had times when I failed this and needed some sort of system.
Your son has so much joy and so much to teach all of us!!!April 3, 2015 – 12:36 pm
Kristi Campbell - Thanks Kim and you’re right – we can all learn to breathe through the anger!! And I agree of course that Tucker has so much joy and such amazing lessons for us. <3April 4, 2015 – 4:03 pm
Elizabeth - Loved this the first time I read it, still love it. Consider it shared my dear!April 3, 2015 – 1:26 pm
Kristi Campbell - Thanks, Elizabeth! I really appreciate it!April 4, 2015 – 4:04 pm
Anna Fitfunner - Kristi, I loved that post the first time that I read, and I’m loving on it again. Tucker really has come so far, and I send out praise for your husband and you, who have stuck it out with that darling boy. Many, many kids with autism can get better over time. Not “cured” (whatever that means) necessarily, but better so that they can participate and find joy in the world around them. Thanks for keying into National Autism Day, as well. Raising awareness means a lot to our community!April 3, 2015 – 6:38 pm
Roshni AaMom - This was an amazing piece because it gives one a firsthand insight that very few articles have been able to give of what it REALLY feels like!! Such a well deserved award, Kristi! 🙂April 3, 2015 – 8:51 pm
Dana - I love this post – isn’t this the one you read at Blog U? I’m glad you are sharing it again. I feel lucky to be able to witness Tucker’s growth over the past few years, and I look forward to meeting him in person. Over the summer, maybe?April 4, 2015 – 12:11 pm
Kristi Campbell - Hey Dana,
Yeah it’s the one I read at BlogU. And I’d LOVE to have Tucker meet you and your kids this summer and be able to meet them myself! (yours, I mean, obviously) Yes!
Happy Passover, Friend!April 4, 2015 – 4:05 pm
TheMomCafe.com - This is one of my favorite posts, so I’m SO glad you shard it again Kristi. Especially in reflecting on your sweet boy and how far he has come and honoring Autism Awareness. <3April 4, 2015 – 5:30 pm
My Inner Chick - CONGRATSSSSSSSS on the ***People’s Choice Award ***!!!!
You. Deserve. It. Darling.
…because your VOICE lifts & transforms & inspires. xxxxxxApril 5, 2015 – 1:53 am
Kristi Campbell - Thanks, Love. Your voice. All of our voices. Really.April 7, 2015 – 11:36 pm
Tamara - Loved the post last summer and I love it now!
And I’d like to meet Tucker this summer too!
Happy Easter!April 5, 2015 – 2:56 pm
Kristi Campbell - I so hope you’ll meet Tucker this summer and that I’ll meet Scar and Des. SO SO much.April 7, 2015 – 11:37 pm
Sara - Love this (both times!) T-Man HAS come a long way! ….and really, I think we all need “A Break” sometimes. There are adults I’ve met who could use a “HANDS” reminder every now and again. ….and I’m reluctant to admit how frequently I’d like to hide under my chair (or desk) to regroup. Huge hugs to you & Tucker.April 6, 2015 – 6:06 pm
Kristi Campbell - Love YOU for reading this (both times) and we so need a fucking break sometimes. All of us. Here’s to bigger chairs or floors that swallow us.April 7, 2015 – 11:38 pm
K - Kristi…I loved that post when I first read it and I love it today. You deserve that award 110 percent.
Yesterday evening, I attended a talk given by a man who has Asperger’s (he wrote Look Me in the Eye) and he shared many similar sentiments…those feelings of being overwhelmed and frustrated and of playing in a world that was beyond the understanding of the other kids. He called it his world of “tigers and elephants,” and he said it took him until he was an adult to realize that his world, his tigers and elephants, were different than everyone else’s. Not worse…just different. His. Unique. 🙂
Love this post. Love you.April 7, 2015 – 11:20 am
Kristi Campbell - Sweets! I’ve been thinking about you and wondering how almost end of year is going for you. I wish I’d attended the same talk – that sounds amazing. I so hope that it doesn’t take Tucker until he’s an adult but if it does, I think that’s maybe okay too. I mean, it takes being solo to have wings, right? And Huge love for you my sweet friend. Always.April 7, 2015 – 11:40 pm
Stacey - >> My friend has a different game in his head than the game that I have in my head. My game, in my head, is better and why can’t he see that my game is more fun and that he’s ruining everything? <<
Holy crap, this is so my son (who, like Tucker, is spectrumy but not enough to be on the spectrum; he instead has SPD). My Thomas has a lot of issues getting other kids to play with him. His teacher and I discussed it and she thinks it has to do with his speech (again, like Tucker, Thomas was a late speaker, lost the few words he said, has articulation issues, and possibly Apraxia) and that the other kids don't want to take the time to wait for my kid to spit his words out. I think it's more that he wants to play a certain game a certain way and he doesn't understand that other kids don't always like to do that. Either way, it's frustrating and saddening knowing my son struggles. He's doing better in the play area at school, but if we go to the park and there are other kids, 9 times out of 10 he either wants to go home or he plays by himself. : It sucks. He doesn't. He's awesome. Frustrating at times, but awesome. 🙂April 8, 2015 – 4:51 pm
Kristi Campbell - Wow Stacey,
Thank you so much for commenting. It’s always so heart-warming to realize that there are kids who are so so similar to Tucker when it comes to speech and who are spectrumy but not enough to actually be there. I really appreciate you taking the time to share and I love your last words. It sucks. He doesn’t. He’s awesome. YES!April 9, 2015 – 11:15 am